Been seeing Rheumatology for a while now and they first diagnosed me with EDS, the first doctor I saw worked with me holistically and was really great at giving me lots of strategies to improve my daily life. Since then I was moved to a different doctor who has just been pushing physios. If I only had EDS that might be alright but I also have ME and specialists and emerge australia talk about how bad graded exercise therapy is.
I came to my last appointment with a plan I've put in place with my GP to get to a physio but I was just told that wasn't good enough and "if I never start I won't get better". I'm not really mad I'm just exhausted like I wasted my time on a doctor that specialises in one thing but seemingly neglects holistic health. I have a care team that's known me much longer than this doctor who have led me to have massive improvements but I recall it was made clear I should ignore them from now on because this doctor is "the only EDS specialist in perth". Again, I don't only have EDS.
The doctor continuously says their job is to just tell me to do more exercise, which feels like a waste of tax money considering it's a public service?
Hyper focusing on one aspect of my health and deciding you know how to fix me after meeting me twice feels both arrogant and lazy.
I know I'm a complex case but when doctors seemingly won't even put in the extra effort to understand overlapping impairments and imply it's my fault I'm not improving as fast as they'd like to see, it just feels like I should stop trying to find extra supports.
I've left the service and know I'll continue to improve my body and strength at my own pace with my own care team but I believe this doctor will continue to hurt people similar to me and it is stressful.
"Lack of care or knowledge"
About: Sir Charles Gairdner Hospital Sir Charles Gairdner Hospital Nedlands 6009
Posted by tired and bendy (as ),
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