"Care Recieved"

For several days last month I was treated brilliantly by all involved in my care from the ED, during transport to Ward 2K( Wilson Transport) and while in Ward 2K.

I felt I was well looked after and my every concern was heard. I was fully involved in my care plan and my opinion was valued. I was able to partake in a group therapy DBT program where the psychologist took time to personally explain 29 years worth of confusion to me and explain DBT in a way that was Neurodivergent friendly. 

I'd like to pass on my absolute gratitude onto the Occupational Therapy Assistant Bec ( in Ward 2K)  who discussed topics that we both had interest in, encouraged me to participate in programs which I participated in most of them as I felt supported and included by Bec. I was listened to when I needed to vent and I was supported and encouraged every step of the way. Nothing was ever a hassle to Bec and I wish I had the chance to thank her in person for her help. 

Every Doctor, Nurse, Social Worker, Psychologist and Psychiatrist involved in my care was brilliant. 

I hope this positive feedback is passed on as I feel it may have got lost in the not so positive points.

I have been in contact with the Royal Perth Feedback team as I sent an email asking if my incorrect EUPD diagnosis could be removed from the ' Principal Diagnosis' section as I'm Autistic and have had EUPD incorrectly put on my discharge summaries.

I spoke to someone via the phone who assured me that the positive feedback would be passed on however I was asked why I presented to ED and, I recall they said, that it wasn't Autism I presented with it was EUPD so unless you tell me why you presented the Psychiatrists won't change the diagnosis.

I reluctantly told the feedback officer why I presented and that the symptoms are a part of EUPD however I do not have EUPD and EUPD can be incorrectly be diagnosed instead of Autism.

As I felt pressured during the phone call into saying EUPD was correct as one of the principal diagnosis and I tried to explain that I wanted Autism listed in my co- existing conditions. I had to explain via email why I wanted EUPD removed from the principal diagnosis list as I felt I couldn't explain this during the phone call.

I recieved an email saying that the head Psychiatrist agreed that EUPD wasn't the principal diagnosis and CPTSD and Co- Existing Autism were the main diagnosis.

I applied through FOI and I recieved a new discharge summary showing that EUPD had been removed however Autism is not listed anywhere in the discharge summary, I requested Autism to be listed as a condition in the amended discharge summary.

I do hope this change can happen and I hope the feedback is passed onto the feeback officer- that a diagnosis by the feedback officer is not a psychiatric/ psychological evaluation and that I believe they shouldn't seemingly pressure people into agreeing with what turns out to be an incorrect opinion.