I had been dealing with a large goitre for a few years. But had been assured in the UK that it was only a cyst that needed removed. However, upon returning to Australia I had it ultra sounded again when i was referred to the endocrine surgery team at Royal Perth hospital. This was performed in July and showed that it had grown substantially and appeared not to be a cyst, therefore a biopsy was performed which showed it to be a suspicious follicular neoplasm, but did not confirm or rule out malignancy.
Upon being given results (August) i was told by my surgeon that I had already been added to the waitlist (category 2) for a hemi thyroidectomy to diagnose. I visited my surgeon again (October) for lymph node ultra sounds and was told again by my surgeon that I was on the waitlist but still there were quite a few people ahead of me.
This month i followed up with Royal Perth to get an update on my place on the waitlist as i had expected/hoped to have heard something by then as it was past the three month mark. This took several frustrating days of calling and being passed around as well as being told I would receive a call from my surgeon the following day. When this call never came, I called once again to find out what was happening. I was told that not only had I never been scheduled for a call with the surgeon, but also after being passed around again i was told i had never been added to the waitlist at all.
Given that my surgeon had confirmed with me twice that i was on the waitlist, i was incredibly frustrated and upset that i had fallen through the cracks. I received a call from a different doctor (not my assigned surgeon) later that afternoon. They told me that i have now been added to the waitlist, category 2. However this put me right back to the start of the three month waitlist and not to where i should have been. This entire ordeal, from being passed about, told twice i was on the waitlist when i was indeed never on it and being told (very matter of fact and with no apology) that i was to now wait another three months, has left me feeling completely dejected, stressed out and honestly, angry.
I cannot understand how my situation was assessed as category 2, meaning surgery should be completed within three months due to concern of malignancy, but now, due to their error, waiting 6/7 months is appropriate? If it was concerning enough to be considered category 2 over three months ago then why am i not being added to the place i would have been on the list? Especially considering that upon the second scan in October it appeared to have grown again already in the space of a few months.
I have been scheduled for an appointment upon my own request with my surgeon, which isn't until next month as they are not available until then.
None of this feels good enough for me and i am beyond disappointed in the outcome as well as the response from the team. Its also worth noting that the endocrine clinic receptionist who connected me through to elective surgery also made rude and unprofessional comments about me to a colleague when they thought i had been placed on hold, complaining about why i would call them to enquire about my surgery.
"Thyroidectomy, waitlist"
About: Royal Perth Hospital / Diabetes and Endocrine Disorders Service Royal Perth Hospital Diabetes and Endocrine Disorders Service Perth 6000
Posted by Barista33 (as ),
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