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"Thyroidectomy, waitlist"

About: Royal Perth Hospital / Diabetes and Endocrine Disorders Service

(as the patient),

I had been dealing with a large goitre for a few years. But had been assured in the UK that it was only a cyst that needed removed. However, upon returning to Australia I had it ultra sounded again when i was referred to the endocrine surgery team at Royal Perth hospital. This was performed in July and showed that it had grown substantially and appeared not to be a cyst, therefore a biopsy was performed which showed it to be a suspicious follicular neoplasm, but did not confirm or rule out malignancy.

Upon being given results (August) i was told by my surgeon that I had already been added to the waitlist (category 2) for a hemi thyroidectomy to diagnose. I visited my surgeon again (October) for lymph node ultra sounds and was told again by my surgeon that I was on the waitlist but still there were quite a few people ahead of me.

This month i followed up with Royal Perth to get an update on my place on the waitlist as i had expected/hoped to have heard something by then as it was past the three month mark. This took several frustrating days of calling and being passed around as well as being told I would receive a call from my surgeon the following day. When this call never came, I called once again to find out what was happening. I was told that not only had I never been scheduled for a call with the surgeon, but also after being passed around again i was told i had never been added to the waitlist at all.

Given that my surgeon had confirmed with me twice that i was on the waitlist, i was incredibly frustrated and upset that i had fallen through the cracks. I received a call from a different doctor (not my assigned surgeon) later that afternoon. They told me that i have now been added to the waitlist, category 2. However this put me right back to the start of the three month waitlist and not to where i should have been. This entire ordeal, from being passed about, told twice i was on the waitlist when i was indeed never on it and being told (very matter of fact and with no apology) that i was to now wait another three months, has left me feeling completely dejected, stressed out and honestly, angry.

I cannot understand how my situation was assessed as category 2, meaning surgery should be completed within three months due to concern of malignancy, but now, due to their error, waiting 6/7 months is appropriate? If it was concerning enough to be considered category 2 over three months ago then why am i not being added to the place i would have been on the list? Especially considering that upon the second scan in October it appeared to have grown again already in the space of a few months.

I have been scheduled for an appointment upon my own request with my surgeon, which isn't until next month as they are not available until then.

None of this feels good enough for me and i am beyond disappointed in the outcome as well as the response from the team. Its also worth noting that the endocrine clinic receptionist who connected me through to elective surgery also made rude and unprofessional comments about me to a colleague when they thought i had been placed on hold, complaining about why i would call them to enquire about my surgery. 

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Responses

Response from Ben Noteboom, Executive Director, Royal Perth Bentley Group 3 weeks ago
Ben Noteboom
Executive Director,
Royal Perth Bentley Group
Submitted on 28/11/2024 at 12:20 PM
Published on Care Opinion at 3:01 PM


picture of Ben Noteboom

Dear Barista33,

Thank you for taking the time to share your story on Care Opinion.

I was deeply sorry to read of your frustration and worry while waiting for surgery at Royal Perth Hospital and acknowledge the distress this is causing you.

I was also truly sorry to hear that on calling the Endocrinology Clinic, the Receptionist was unprofessional in their comments when transferring your call to the Elective Surgery Waitlist (ESWL) office. This interaction does not sound like it aligns with our values and expectations for compassionate care, and I would like to assure you that your interaction has been shared with the Outpatient Manager for discussion with clerical staff who work in this area.

It is also disappointing to hear that when you tried to enquire into your surgery wait time with the ESWL team, you felt like you were being passed around and your calls were not returned by the medical team. I can only imagine the frustration and disappointment you must have experienced.

Without knowing your details, it is difficult to comment on your particular situation; however, it does appear from reading your story that there was a delay in your case being added to the ESWL. If this is the case and rather than having to commence the Category 2 wait time again, consideration can be made of the time you have already waited. I would encourage you to contact the Patient Experience team on (08) 9224 1637 or via email: RPBG.feedback@health.wa.gov.au so a review of your case can be undertaken and we can ensure that you are in an appropriate place on the waitlist.

The RPBG strives to deliver the best care in a timely manner and I would like to sincerely apologise that this was not your experience of our service.

I wish you all the best with your surgery and recovery.

Kind Regards

Ben Noteboom

Executive Director

Royal Perth Bentley Group

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