"Macula Research Group – Clinical Trials Unit"

I had a retinal vein bleed in June 2022. I was recruited to the Macula Clinic Clinical Trial in August 2023 which continued until November this year. 

The diagnosis and finding the underlying causes was disturbing for me as I had pretty good health. However, the support I received throughout the trial helped allay those fears that you have when your body goes awry!

Fortunately I have improved my vision with regular eye injections, something I didn’t even know could occur! There has been no further bleeding or oedema. 

I leave the clinical trial with some trepidation, this service has been a big part of my life for nearly 18 months. Now I enter the real world of the very busy Sydney Eye Hospital clinics. Initially I have opted to see the treating Professor in her private rooms as we work out the way forward now my trial is over. Once I know more regarding my future treatment program I will revert to the public clinics. 

My only comment to the clinical trials team - at no stage did anyone ask me how I felt about what was happening to me. While you concentrate in eyes remember they are also windows to the soul! 

To the Professors and Fellowes, the funding body and all the team at Sydney Eye Hospital thank you. A special thank you to Hong and her clinical trial team for the journey, which you made so much easier for me. I wish you all the very best in your professional and personal journeys!