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"Fertility treatment"

About: Royal Hospital for Women

(as the patient),

Rcently I attended your the fertility research centre. When I first enquired months ago, I was told that you didn't do social egg freezing. However, a Professor at the service advocated for me and explained my unusual circumstances, and someone called back to offer an appointment. I waited for this appointment, and worked hard on things like weight loss and fitness to improve my chances. I did not explore any other options.

When I arrived for my appointment, I was seen by a doctor who did mention that what is called "social egg freezing" was not the default position, but that, after my test results were received, they would discuss my case in a committee and get back to me. They told me to get my test results as soon as possible. I immediately got all the blood tests. They took so much blood I felt dizzy. Then I booked in for an internal ultrasound a few days later. I find this procedure very distressing and invasive. However, I underwent it. Meanwhile I had waited months for this apoointment, losing precious time.

That same afternoon, the doctor called me and said "We don't do social egg freezing". I asked for the results of my tests, and they hadn't even come through yet. I was devastated. I am almost 40 and I am a concession card holder. I had difficulty dating and finding a partner after years of abusive relationships. I had uncontrolled epilepsy for years, and the last time I investigated doing egg freezing I was put off by the dangers due to the relationship between my seizures and artificial hormones. I don't know what "social egg freezing" means, but I find it an offensive term.

Apparently it is assumed that women who don't have children do so by choice! Or perhaps, it seems, women who choose not to be in abusive relationships are making a "social" decision? Or perhaps have refractory epilepsy and being scared of clusters of grand mal seizures restarting are making a social decision? Perhaps, it seems, women who are on the disability pension shouldn't have children at all because they can't afford egg freezing? And as for women who want to get off the disability pension before they have children, well again, perhaps we are just too driven and seemingly don't deserve to have children? .

Apart from having to have objects inserted into my vagina for what I feel is no reason, and losing precious months, the shock of having my hopes raised and dashed severely affected me. I had suicidal thoughts, and was unable to function. I have had to take 2 days off form my studies , and also I was unable to do anything on the weekend. I didn't want to get out of bed. I have just lost an offer of employment because I was too depressed to function properly and missed out on some of the onboarding requirements. Part time employment is very hard to come by when you are a disability pensioner and this was a valuable opportunity.

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Responses

Response from Maria Fenn, Nursing Co-director, Gynaecology Services Division, Royal Hospital for Women last month
Maria Fenn
Nursing Co-director, Gynaecology Services Division,
Royal Hospital for Women
Submitted on 20/11/2024 at 8:55 PM
Published on Care Opinion on 21/11/2024 at 10:43 AM


Dear vulpeculant65

Thank you for your feedback regarding your experience with the Royal Hospital for Women Fertility and Research Centre.

I am very sorry to read of your experience and it sounds as though you have been through a very challenging time and we understand that the ability to have children can have a very strong impact on a person.

I’m aware that we have also received your concerns via a formal complaint, and I wish to express appreciation that you have done this to allow the chance to respond with detail. I’m sure you will understand that it is not appropriate to disclose the result of the investigation publicly, but a response has been recently provided back to you.

The Royal Hospital for Women has a high expectation for quality care and we understand the importance of good communication. I am very sorry that we did not meet this expectation and this experience has caused you distress. The term “social egg freezing” is a commonly used term in many fertility clinics and is in no way intended to be offensive. You have raised an important point regarding use of this language and the need to respect that sensitivity is needed when talking about the freezing of eggs for non-medical reason and that language can make a big difference when conversations are being held about this procedure. We have shared with the staff so they can reflect and consider another terminology such as “elective egg freezing” or “non-medical egg freezing” in the future.

The Fertility and Research Centre at the Royal Hospital for Women is funded by the government to provide low-cost IVF and fertility preservation treatment for patients with cancer. These medical treatments may result in egg freezing referred to as “medical egg freezing” and parameters for this are in place, as we are not funded to provide egg freezing otherwise.

I am sorry that we were unfortunately unable to provide you with egg freezing treatment as you had hoped for. We do take your emotions seriously and would like to offer you an opportunity for an appointment with our Fertility and Research Centre counsellor if you wish, please feel free to phone my office on 02 9382 6583.

Kind regards

Maria Fenn

Nursing Co-Director Women’s Health and Gynaecological Services

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