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"Breast cancer reconstructive surgery"

About: Royal Perth Hospital / Trauma & Reconstructive & Plastic Surgery Services

(as the patient),

I was diagnosed with stage 2 grade 3 IDC in 2019, I underwent 3 surgeries in 6 weeks, one of which was a right sided mastectomy, 6 months of chemo, 15 rounds radiation and am now into my 3rd year of hormone blockers. I am a single mum, a student and a cancer survivor. I was put on the preventative/reconstructive surgery waitlist in early 2021 as a category 3 elective surgery patient (after waiting for a year for the appointment) at RPH plastics department for a prophylactic mastectomy and tram flap reconstruction.

Since being put on the waitlist public cat 3 elective surgery was cancelled in WA due to Covid, which I heartbreakingly found out on the news as I was not informed by RPH. I was then contacted in late 2022 to notify me I was at the top of the list and to do the pre-op appts (which I did) and was told it would be done by end of a month earlier this year, after that month rolled by I contacted plastics and was told oh sorry won’t be done before another 3 months, so I was told I was pencilled in for that month. Now as I need to stop hormone blocker treatment 2 weeks prior to surgery, if my math serves me correctly, that month has blown by as well. I have now waited 800 days since my original appointment and still no date in sight nor a phone call to be heard.

I looked up average wait times for cat 3 elective plastic surgery at RPH and the median wait time as of March 2023 was 211 days and I’m devastated. Not only have I seemingly been given false information, been uninformed and led to believe my treatment was something it has never been but I’m also wildly angry that had I known that I’d be waiting this long, I would’ve taken out private health cover, had my surgery, recovered and be a year into my new healed life rather than brought to tears daily due to living in 12hour surgery preparation with complex PTSD due to cancer treatment.

This is cancer related surgery and I feel no one cares!

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Responses

Response from Sandra Miller, Executive Director Safety Quality & Consumer Engagement, East Metropolitan Health Service about a year and a half ago
Sandra Miller
Executive Director Safety Quality & Consumer Engagement,
East Metropolitan Health Service
Submitted on 24/05/2023 at 11:24 AM
Published on Care Opinion at 12:16 PM


picture of Sandra Miller

Dear Misundastood

I am truly sorry to read of your experience, your significant surgeries, treatment and therapies, and the impact this has had on you and your family. I appreciate that the lengthy delay in receiving your reconstructive breast surgery at Royal Perth Hospital is further adding to your frustration and worry.

Category 3 non-urgent elective surgeries were put on hold during the COVID-19 response to ensure West Australian hospitals were able to manage as COVID affected patients increased demand on hospital resources. We are committed to ensuring that affected surgical patients are being proactively followed up and the Elective Waitlist Manager and her team are ensuring those patients who have waited longest are being case managed. I would like to sincerely apologise that this has not been communicated to you and am grateful that you have brought it to our attention.

Without knowing your particular details it is difficult to comment further and I would urge you to contact the Consumer Engagement Unit on (08) 9224 1637, 8am to 4pm or email RPBG.feedback@health.wa.gov.au so that they may look into your case for you. This is not the level of patient-centred care we aim to provide from the Royal Perth Bentley Group and I would like to convey my heartfelt apology.

I do hope that through your contact with our service, we can offer the assurance you are seeking and I wish you all the best in your continuing healthcare journey.

Kind regards

Sandra Miller

A/Executive Director

Royal Perth Bentley Group

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful

Update posted by Misundastood (the patient)

Thank you very much for your prompt response Sandra, I have contacted the CEU and hopefully get some answers (preferably surgery) soon.

Kind regards

Misundastood

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