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"Eating disorder protocol"

About: Box Hill Hospital / General Medical

(as the patient),

Just over a year ago, I was admitted several times under ED protocol, despite actually being admitted for digestive problems. I just happened to be diagnosed with an eating disorder, which causes the problems, but I was not having eating disorder symptoms.

I was served cold food because it seemed the meals came up long after being made and then I believe nurses would wait 30-60 minutes to give the meal. Multiple times, my metoclopromide had to be redosed due to me trying to gauge when to request, and then saying that it was a good time and then it wasn't. It was always me trying to explain that I don't take medication for no reason, therefore the medication would have to be redosed or I would have to skip the meal. There was always confusion as to why I couldn't eat, even though I had been admitted for digestive problems. 

Multiple times, I was told that I wasn't sick or full, despite that being the reason I was admitted, because apparently if you have an eating disorder, you can never have physical problems. I felt according to the way I was treated, they can only be psychological. Despite the fact that eating disorders literally kill, and if they were all psychological, why would I have needed medical treatment. I was struggling so hard to get even some of the food down because of my atrophied stomach, and I felt I received no 'support' except the threat of tube, and arguments every meal as I pleaded to not be made to hurt my stomach more with the meal I had been given. 

The dietitian was quite blunt, but I liked that. She didn't bull**** me, and she was honest instead of doing that thing I believe medical professionals do, where they seemingly lie to make you more inclined to do what they want. This is about in a general period where I kept getting admitted due to the fact that I would have obs stabilised over ~2 days but not be physically ready to go home and eat consistently, so I would return pretty fast. My dietitian had been telling me to attend emergency if I couldn't eat for 2 days, so for a few months it was once a week or so.

This dietitian who was blunt wasn't there over the holidays, which was rough, because she was writing 'no tube' on my chart because she knew that I wasnt there for my eating disorder symptoms (I wish I had been treated for this problem without ED protocol), but over the holidays, the worst of it, she wasn't there and the replacement dietitian had told them to organise a tube. I had to push myself even harder, due to the fact that I was sicker and they were making me eat so much compared to how much I could fit in, to avoid having a pipe shoved down my throat and having the Ensure that I was struggling to get down put down anyway. So of course I was going to drink it instead of being tubed, if I could. 

I read a previously published eating disorder story and thought it was worth sharing my story. I felt that story is accurate and could have almost been written by me (with a few changes) and I wish something had been done, because my story was long after this. Someone high up replied 3 years ago and still, it seems to me nothing had been done when I was there 1-1.5 years ago. I feel shame on BHH for shaming people who are trying their best. I shouldn't be surprised; in my experience, that's pretty standard ED treatment. 

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Responses

Response from David Plunkett, Chief Executive, Eastern Health 2 years ago
David Plunkett
Chief Executive,
Eastern Health
Submitted on 1/03/2023 at 1:24 PM
Published on Care Opinion at 2:55 PM


picture of David Plunkett

Dear agenderpotato

Thanks you for taking the time to share your experiences when a patient / attending Eastern Health's Box Hill Hospital. I'm sorry they were not as positive as you expected or how we envisaged they would be.

You have raised a number of items that I feel we would benefit from exploring these further with you directly. As such, I would like to invite you to contact one of our Patient Relations Advisors in the Eastern Health Centre for Patient Experience either by calling 1800 EASTERN or by emailing feedback@easternhealth.org.au.

If you choose to call please be aware that it is possible that the Patient Relations Advisors may be on another call at the time you ring and if so you will be invited to leave a message so they can return your call.

I hope we hear from you soon and thank you in advance.

Regards

David

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