"Care for palliative care elderly patient"

My elderly parent who has recently been diagnosed with a pancreatic tumour is unwell and struggling to cope. 

A recent admission to RPH helped initially however we are now trying to navigate an increasingly difficult and confusing system. 

Conflicting advice and lack of support for a person at the end of their life is unacceptable in my opinion.  

We have found; slow to be diagnosed, slow to be admitted and poor communication 

We’ve found poor education for care givers with conflicting advice 

We just don’t know who to call for help 

And where ever we go there we’ve found are road blocks and delays and confusion. 

Example: 

On discharge having recently started on insulin 

No insulin was included in the discharge medication  

We found advice from two nurses was very different 

No apparent capacity to call for assistance and no one able to provide the education required. 

Long wait for palliative care doctor. First appointment with palliative care physician is soon but parent not coping  

Called ambulance but advised there would be an eleven hour wait 

As my parent already frail and unwell would not cope with. 

Despite happy to pay for help none in Perth seems interested. 

We are from Broome, indigenous with no one seemingly prepared to assist us 

Not good enough in my opinion 

We just need to get back to Broome so my parent can die in peace with care and compassion We were just wanting a plan to hopefully get them back to Broome with some level of care for their symptoms but unable to get any help from anyone 

No apparent team approach or care. Appears to be no considered organised approach to my parent’s end of life care 

Staff unable to communicate effectively with a frail deaf person 

As an indigenous person crying out for help am hoping someone out there will listen and provide some semblance of interest 

Please help