My child had a Dental appointment scheduled for this month and on another date a Haematology appointment.
I called the liaisons nurse to re-arrange the Haematology for the same day as the dental. They checked there was a clinic that day and that my child's treating Dr would be there too, this is due to the complexities of my child's history.
The nurse confirmed all and made the appointment.
On the day, we waited for dental and after a while was called in to a room. We met a new Dentist that we've never seen before, wasn't a problem. They did a quick check and after confirming everything was ok, said that now my child is an adolescent, they discharged.
After asking where to next I was given a small flyer with all private dentist and then subsequently told that none of them could do my child.
I said so where are we supposed to go then?
They wrote on the back a name of someone who does special needs.
I said my child is under the complex care and this transition to adult.
I was informed it is not the case with dental.
They said that they mentioned it at last appointment along with another hospital but I had said we would discuss this at a later one, due to Covid this was a quick in and out.
I thought how crap is this, the empathy really shows.
So afterwards we went to the next appointment Haematology, well we sat and waited and waited so we were the last ones to be called by a Dr who I never seen before!
I said who are you? they replied I'm a new Dr here.
I asked where's my child's treating DR? the reply was they had the day off!
I replied that we rearranged the appointment specifically for this day and also travelled over an hour and have to arrange extra support to help with hospital appointments.
I didn't get much response, another Dr started to comment from behind about them being away.
I was so fuming that we just left. I felt it was a complete lack of time for both appointments.
We had this happen before and when we questioned the Dr had no clue about what to do and what was next and no idea, so from that appointment onwards we were told it would always be my child's treating DR from now on. You only see them once a year, we always get the feeling my child is an embarrassment to that clinic as they caused this mess in the first place with their lack of care.
My child's spine, lack of follow up from complex clinic. In my opinion, this department is a tea party without a cup of tea. It took my community provider to flag their spine issues with this team, something that, I feel, this team should have been keeping an eye on but last checked 3yrs ago.
There's still request from the last appointment that nothing's happened again.
We also had dramas over my child's infusa port which suddenly blocked recently on afternoon infusion. That whole saga was a complete disgrace, in my opinion, to get the operation to replace it. I felt the lack of communication completely ignorant of our requests until the Anaesthetist called to go through pre-op, which I replied news to us that no one spoke to us at all and that they better go and speak to the team pretty quick.
In my opinion, you don't do complex medical at all well, there's constant lack of communication and understanding that I feel it's easier to brush them away.
"Lack of follow up and responsibility"
About: Oncology and Haematology Department / Oncology and Haematology Outpatient and Same Day Care – Clinic H Oncology and Haematology Department Oncology and Haematology Outpatient and Same Day Care – Clinic H Nedlands 6009 Perth Children's Hospital / Dental - Outpatient Clinic C Perth Children's Hospital Dental - Outpatient Clinic C Nedlands 6009
Posted by saturncd49 (as ),
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See more responses from Linda Hop
Update posted by saturncd49 (a service user) 3 years ago
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